Christmas Outfit

Christmas Eve

24th December 2018 admin 0

We are home, out of hospital. Chloe is currently on antibiotics (oral). Chloe was supposed to have 1 final dose of IV antibiotics at hospital [more]

Chloe Sitting

Sitting – Practice

3rd December 2018 admin 0

Chloe has been learning and practicing to sit up straight, sometimes by herself for a short time. Huge progress in the last 6 months. Chloe [more]

Chloe at Christmas

Its nearly Christmas

1st December 2018 admin 0

Its the 1st December today and to celebrate the start of Christmas, Chloe has been wearing her Christmas outfit all day, and practising her sitting [more]

Chloe playing with Mummy

Hyper Mummy Time

11th November 2018 admin 0

Short video of Chloe playing with Mummy. Chloe loves playing,usually the rougher the better, Chloe is not a gentle girl, sweet and softplay doesn’t usually [more]

Bumbo Seat

Chloe’s New Chair

7th September 2017 admin 0

We have just brought a new (2nd hand, but new to us) specialist bumbo/child rite seat for Chloe to start sitting up in. A few [more]

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It’s summer time

17th June 2017 admin 0

Chloe is fully kitted out for summer today. Such a lovely warm day, although probably too hot to be out and about.

Chloe's home

Chloe is home

8th April 2017 admin 0

Chloe is now home (as of Friday afternoon). It’s lovely to finally be home with Chloe, and Chloe seems much happier at home in an [more]

Chloe's new bean bag

New bean bag

23rd February 2017 admin 0

Chloe has a new bean bag chair. Hannah found this at Argos, one of the few that were supportive enough. We are still waiting for [more]


Tiring Weekend

20th February 2017 admin 0

Chloe has been in Hospital for almost 2 weeks now. This weekend Chloe was starting to feel better, feeds had started to be increased and [more]

Sleeping sitting up

Asleep sitting

12th February 2017 admin 0

We are having to sit Chloe up whilst Chloe is asleep to keep her oxygen levels high enough. Bless Chloe, she is so tired this [more]

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Physio today

6th February 2017 admin 0

Chloe has had physiotherapy and portage today! Busy day for her. In physiotherapy Chloe practised sitting and standing. Chloe then decided to show off by [more]