New Shoes

New Shoes…again

9th November 2018 admin 0

Chloe received her next pair of shoes this week. We have chosen burgundy – we have a little choice of what style shoe Chloe has, [more]

Swimming with Chloe

22nd October 2018 admin 0

This sunday afternoon we booked an hour’s swimming session at The Bluebells. The Bluebells is run by the Sebastian’s Action Trust for which we have [more]

Chloe's New Hair

Hair dressers

20th October 2018 admin 0

This morning we visited the hair dressers for a short trim. We are trying to grow Chloe’s hair, the main problem we have is the [more]

Chloe and Brothers on Holiday

Butlins – Weekend Away

29th October 2016 admin 0

Last weekend we as a family went away for a long weekend break to Butlins in Minehead. We left friday morning, returning monday afternoon. Proved to [more]


First Visit to Naomi House

11th October 2016 admin 0

The weekend just gone we spent at Naomi House. Naomi House is a hospice providing respite and care for life limiting or life-threatened children. In order [more]

Bath Time

Bath Time

25th August 2016 admin 0

A lovely photo of Chloe yesterday evening in the bath. Chloe enjoys kicking the water a bit – before falling asleep.  

Swimming pool cuddles

The Bluebells – Sunday

22nd August 2016 admin 0

This weekend we had an opportunity to spend the day at ‘The Bluebells‘, this is a house owned by the Sebastian’s Action Trust. The Trust provide [more]

Mayflower Theatre

Mayflower Threatre

6th August 2016 admin 0

Today we went to the Mayflower Theatre to see Pirates of Penzance. The Mayflower have viewings that are listed as ‘Relaxed showing’ which means young [more]

Naomi House

Naomi House

23rd July 2016 admin 0

Friday morning saw Chloe have her first visit to Naomi House ( This initial visit was to have a look around, try some of the [more]

Soft Blanket

Soft Blanket

10th May 2016 admin 0

It has come to our attention that Chloe may like memory foam mattresses and soft blankets. Tonight without any help Chloe has managed to fall [more]