Christmas Outfit

Christmas Eve

24th December 2018 admin 0

We are home, out of hospital. Chloe is currently on antibiotics (oral). Chloe was supposed to have 1 final dose of IV antibiotics at hospital [more]

Mummy and Chloe

In hospital – Day 3

23rd December 2018 admin 0

We are still in hospital this morning. Chloe has now had 48 hours of IV antibiotics. Urine results showed that Chloe has grown a nasty [more]

Chloe's favourite toys

In hospital – Day 2

22nd December 2018 admin 0

Chloe is still in hospital, stayed overnight. Bloods that were taken showed that Chloe’s infection level was very high. We are still waiting this morning’s [more]

We missed you G1

21st December 2018 admin 0

Chloe had been enjoying a few days stay at Naomi House, just for respite. Unfortunately following a number of phone calls with Naomi House Chloe [more]


Sleeping – Ventilator

20th July 2018 admin 0

Chloe has recently been in Hospital due to her lungs. Chloe seems to keep getting lung/chest infections, and when these are investigated suggest that Chloe’s [more]

First visit to Hospital in a while

First visit in a while

13th September 2017 admin 0

First visit to hospital for a few weeks. Last winter Chloe was in and out of hospital with coughs, cold, flu which affected Chloe’s breathing [more]


Still in Hospital

27th May 2017 admin 0

We are still in hospital (saturday morning), having been admitted monday. We are hoping Chloe will be well enough to be allowed home today or [more]

Chloe in Hospital again


23rd May 2017 admin 0

We are still in hospital with Chloe. Chloe is still on Airvu at the moment to help with breathing. We have just been moved to [more]


Ambulance x2

23rd May 2017 admin 0

Ambulance No. 1 Monday morning we ended up phoning PAU (Paediatrics Assessment Unit) at Southampton General, Chloe being Chloe means that we currently always have [more]


Bank Holiday

1st May 2017 admin 0

Chloe has recently picked up yet another chest infection, which turned into pneumonia. Chloe had gone up to 1/2 litre of oxygen to help keep [more]

Chloe's home

Chloe is home

8th April 2017 admin 0

Chloe is now home (as of Friday afternoon). It’s lovely to finally be home with Chloe, and Chloe seems much happier at home in an [more]