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Long day

4th July 2016 admin 0

​It’s been a long day today. We were both up at 6am and only now (10pm) just leaving the ward to go back to our [more]

John Radcliffe

Day 1 (Evening)

4th July 2016 admin 0

It’s now 19:30. Chloe is just waking up. They had planned to wake Chloe up tomorrow; but she seems to be walking up earlier. Which [more]

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TV Addict

4th July 2016 admin 0

Chloe is enjoying some television before her big day. Although the small joy of being a baby is that Chloe doesn’t know what’s coming up. [more]

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6am

4th July 2016 admin 0

It’s 6am as we are both up and dressed and on the ward with Chloe. Chloe has had a good sleep apparently and the overnight [more]

Daddy Cuddles

3rd July 2016 admin 0

Chloe having some Daddy cuddles before falling asleep. She’s very sweet.

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Settling In

3rd July 2016 admin 0

We are just getting settled in at Oxford. Chloe is now in a side room at Robins Ward in John Radcliffe Hospital. We are staying [more]

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Happy Father’s Day

20th June 2016 admin 0

Father’s Day happens to also be the day before Chloe’s cranial facial surgery. Parents have kindly helped and looking after the boys for the next [more]

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Pre-assessment

13th June 2016 admin 0

This afternoon Hannah and Daniel together with Chloe are travelling up to Oxford. Tomorrow, Tuesday and Wednesday Chloe has a number of pre-assessment appointments with [more]

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Saturday Morning

4th June 2016 admin 0

  This morning me and the boys were out of the house and in the car by 7:30am. All dressed and fed, bag packed and [more]

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4th June

3rd June 2016 admin 0

It’s Friday afternoon and Hannah has just been advised that they are going to be looking to do the shunt part of the procedure tomorrow [more]

Chloe in Hospital 3

Change of Plans

2nd June 2016 admin 0

Wednesday Yesterday was quite a disappointing day. Waited all day for gastrointestinal team, who never came to see us. Neuro consultant wanted gastrointestinal team to [more]

Neckie

Still in Hospital…

18th May 2016 admin 0

Quick update. Chloe is still in Hospital at Southampton General Hospital. The bolt has been taken out of her brain – which was previously measuring [more]

New Cotbed

13th May 2016 admin 0

A lengthy visit from the Community nurses today, taught me (husband) how to suction Chloe’s NPA (Nasopharyngeal airway). Up until now Hannah has been the [more]