Cuddles with Joshua

Brother Cuddles

28th August 2016 admin 0

Joshua has had a lovely cuddle with Chloe this morning. Given her lots and lots of kisses. Daniel’s also had a lovely cuddle. Daniel would [more]

Chloe's Wheelchair

Wheelchair – Its Arrived

25th August 2016 admin 0

Very happy Hannah today. Chloe’s new wheelchair ‘Stingray’  has been delivered. Up until now Chloe has always sat in a car seat for the car [more]

Bath Time

Bath Time

25th August 2016 admin 0

A lovely photo of Chloe yesterday evening in the bath. Chloe enjoys kicking the water a bit – before falling asleep.  

Swimming pool cuddles

The Bluebells – Sunday

22nd August 2016 admin 0

This weekend we had an opportunity to spend the day at ‘The Bluebells‘, this is a house owned by the Sebastian’s Action Trust. The Trust provide [more]

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Operation: Peg

21st August 2016 admin 0

We received Chloe’s next surgery date through the post today. This will be in September. This surgery is to have a peg inserted to help [more]


Sleepy baby

20th August 2016 admin 0

Chloe has just this second fallen asleep. A little grumpy where Chloe has had a busy day, but sure enough a few minutes on our [more]

Oxygen Free

No Oxygen

20th August 2016 admin 0

This morning Chloe is going oxygen free, one less cable around her nose.

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Most Tiring Child Awards

20th August 2016 admin 0

Summer holidays. Proud to announce that our children definately take the gold, silver and bronze medals for being the most tiring and most hard work [more]

First Haircut

First Haircut

20th August 2016 admin 0

Chloe has today had her first hair cut, although only a small one. Just to trim a very small amount off the top really. I’m [more]

Chloe Asleep

Rolling Around

15th August 2016 admin 0

A few photos of Chloe’s latest development. Chloe has started to roll around on the floor a bit. This is still quite tiring for Chloe, [more]